Event - Remie’s Pancake Feed Benefit & Silent Auction

DATE: Sun, May 18 - 03:00 pm - Sun, May 18 - 06:00 pm

VENUE: Abundant Life Church,

ADDRESS: Grand Island, NE  68803

My name is Megan Stuchlik, and I’m reaching out to share the story of my 7-year-old daughter, Remie Bragg, who is battling a rare and complex medical condition. We are hosting a local benefit and T-shirt fundraiser in Grand Island, and I would be so grateful if your station would consider helping us spread the word.

Remie was born missing her left arm and has a single, mis-shaped kidney. She also carries a TBX5 gene mutation, possibly the first of its kind ever documented. She faces daily challenges with scoliosis, gastrointestinal dysmotility, autonomic dysfunction (she cannot sweat), and more. She underwent spinal surgery at just 16 months old and has seen over 100 specialists across the country. We’ve now been referred to Children’s Hospital of Philadelphia for further testing and evaluations in six different specialty departments—including autonomic testing and scoliosis surgery evaluation (VBT), neither of which are available in Nebraska.

To support the medical and travel expenses, we are organizing:
Remie’s Pancake Feed Benefit & Silent Auction
Date: Sunday, May 18
Time: 3:00 PM – 6:00 PM
Location: Abundant Life Church, Grand Island, NE

We are also running a “Remie Strong” T-shirt fundraiser, with the goal of selling 1,000 shirts—Remie’s favorite number!